NISPA

Nijmegen Institute for Scientist-Practitioners in Addiction

Experience in care, burden, and hope of the family members of HIV patients with and without a history of injecting drug use in Indonesia: An exploratory case

TitelExperience in care, burden, and hope of the family members of HIV patients with and without a history of injecting drug use in Indonesia: An exploratory case
PublicatietypeJournal Article
Jaar van publicatie2014
AuteursIskandar S, Trianda P, Fitriana E, Pinxten L, DeJong CA
UitgaveMental Health and Substance Use
Samenvatting
Addiction and human immunodeficiency virus (HIV) patients suffer from many medical
problems. Family can be a source of stress or relief for the patients. Therefore, we
explored and compared the perception of family members of HIV patients with and
without a history of injecting drug use (IDU) in Indonesia in the context of: (i) care
provided for HIV patients, (ii) harmful impact of the disease for their relatives, and
(iii) the hopes of family members concerning the future of their sick relatives. An
exploratory case study was conducted with 79 family members: 36 family members
of HIV patients with a history of IDU and 43 family members of HIV patients
without a history of IDU. They were recruited through consecutive sampling in a
HIV clinic in an urban setting in West Java. The Family Contact Information Support
scale, the Family Member Impact scale, and the Hopefulness-hopelessness
questionnaire were used to interview the family members. Most family members were
spouses/partners (30%) or parents (28%). Families of HIV patients showed good
satisfaction about the care given by health care providers. Families of HIV patients
with a history of IDU perceived more worrying behaviour of their sick relatives
compared to the families of HIV patients without a history of IDU. Hope for the
future of their sick relatives was high and comparable in these two groups. This study
shows that family members of HIV patients with a history of IDU perceived the
disease as more harmful, which should be addressed by the healthcare providers to
support the family and heighten their involvement in the treatment.
DOI10.1080/17523281.2014.924547